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Caregivers, simply put, are the people who make my life happen. And hiring and managing caregivers is essential to being an adult with SMA living life on my terms. But, no matter how many times I have to do it, hiring new personal care attendants PCAs is one of my least favorite things.
Let me tell you why. PCAs come from all walks of life. Some are students, others are CNAs or military veterans. I have a handful of attendants on my staff at any given time but, in general, only one person works each shift.
People who employee PCAs all have different hiring and funding systems based on the guidelines of the states we live in. And as anyone knows, life changes, sometimes very rapidly. That means that the job can also change from time to time.
My needs one day might not be my needs the next. The tricky thing about hiring PCAs is that I have to turn my needs and, ultimately my life, into a job description. I let them know I never went to school for this, nor did I ever aspire to manage a team of caregivers when I was young.
Nor do I think I ever will. When you consider that this person will be helping me with literally every aspect of my daily life, it seems almost too simple to say that they need to be compatible with me. Therefore, you have to find someone who understands you well enough to know how you like to live your life.